Summer Camp Program
Ask many people in the hemophilia community about summer camp, and you’ll see an immediate reaction—a big grin, a sparkle in his or her eyes—and hear an immediate retelling of camp stories.
Wyeth recognizes the contribution that the summer camp experience makes to children in the bleeding disorder community and is proud to be the founding and exclusive sponsor of NACCHO (North American Camping Conference of Hemophilia Organizations). NACCHO is the only conference dedicated to sharing best practices for bleeding disorders summer camps and is conducted by the Hemophilia Association of Phoenix, Arizona.
NACCHO and Wyeth also support the health care professionals that are a mainstay of the summer camp
experience. In 2006, a special nursing task force of NACCHO, in association with the Nursing
Working Group of the
National Hemophilia Foundation (NHF), completed guidelines for camp health
centers. The guidelines were
endorsed by the NHF Medical and Scientific Advisory Council and are
available from
www.NACCHO.com or at the NHF Web site, www.hemophilia.org.
In addition to NACCHO, Wyeth provides other assistance to summer camps:
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Financial assistance to be used at the discretion of the camps to fund camp scholarships, as well as other special programs |
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Product donations of XYNTHA, ReFacto, and BeneFIX to camps |
Puppets As Teachers in Hemophilia (PATH)
PATH is a program that provides information, support, and reassurance to children with hemophilia through a hemophilia-specific puppet named Bob.
With more than 300 puppets distributed to Hemophilia Treatment Centers, Bob has become a friend to many children with hemophilia and has helped them to better understand the effects of
hemophilia and how treatment works.
Bob’s features educate children by showing them how
hemophilia and hemophilia treatment affect
each part of the body.
Dream Builders
Dream Builders is an arts education program aimed at educating children with bleeding disorders and their families about hemophilia.
Boys and girls ages 8 to 12 years build wooden race cars and space shuttles with their families while learning about hemophilia at local hemophilia organizations and treatment centers.
Dream Builders has been exclusively sponsored by Wyeth
since the program began in 2002.
To request more information about the Dream
Builders program, please send an e-mail.
Twinning
The World Federation of Hemophilia (WFH) created the Twinning program in 1994 to improve the
level of health care in developing countries. The WFH Twinning program helps to connect
emerging treatment centers and hemophilia organizations with those more
established centers and organizations around the world to help share
knowledge, care, and best practices.
As the sole sponsor of the Twinning program since 2001, Wyeth has helped
to increase
the level of care and knowledge at 28 treatment centers and
16 patient
organizations worldwide.
National Hemophilia Foundation (NHF)
Since 1948, the NHF has been dedicated to finding better treatments and cures for bleeding and clotting disorders through education, advocacy, and research.
The NHF advances medical knowledge and research of bleeding and clotting disorders through funding research aimed at finding better treatment options and cures.
Wyeth partners with the NHF through grant support and sponsorship as the NHF continues its important work for the hemophilia community.
World Federation of Hemophilia (WFH)
The WFH is a not-for-profit organization dedicated to improving the lives of those with hemophilia and bleeding disorders worldwide.
Wyeth and the WFH work together to improve care, manage development projects, and train health care professionals overseas through grant support, medical education, and patient programs.
Wyeth is proud to sponsor the WFH in its efforts to improve care for hemophilia patients around the world.
Hemophilia Federation of America (HFA)
The HFA is a national not-for-profit advocacy organization striving to improve the treatment options and quality of life for the bleeding disorder community.
The HFA provides many programs and services that help to educate and support those affected by bleeding disorders.
Wyeth works closely with the HFA to assist those living with hemophilia.
Coalition for Hemophilia B
The Coalition for Hemophilia B looks to improve and empower the lives of people affected by hemophilia. Through providing information on treatment options and monitoring, funding, and instigating research and product development, the Coalition supports efforts to eliminate the disease.
Wyeth provides grants to further the educational, research, and community efforts of the coalition to support patients with hemophilia B and their families.
LA Kelley Communications
LA Kelley Communications seeks to educate, empower, and elevate those affected by bleeding disorders worldwide.
As a leader in hemophilia education, LA Kelley Communications provides free comprehensive books and newsletters aimed at educating patients and families about bleeding disorders and helping them to take charge of their treatment.
Wyeth provides a grant to support the Parent Empowerment Newsletter, a publication for families affected by hemophilia.
